The John D. Thompson Hospice Institute for Education, Training and Research, Inc.
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CAREGIVER BEREAVEMENT QUESTIONNAIRE

What state are you from?

1. What is your gender?

Female
Male

2. What is your age?

3. What is your relationship to the person you care for?

Spouse
Child
Other Relationship

4. Do you have someone you could talk to if you needed emotional support or had a difficult decision to make?

Yes
No

5. Do you talk to close friends or relatives (in person or on the phone) at least once a week?

Yes
No

6. Do you belong to any community, volunteer groups or organizations?

Yes
No

7. Do you have any chronic illnesses (such as: diabetes, arthritis, high blood pressure, etc.)?

Yes
No

8. Have you ever been diagnosed with depression?

Yes
No

9. Did the person you were caring for receive hospice care before he/she died?

Yes
No

10. For how long?

Days

10a. How close did you feel to the deceased?

Not Close
Somewhat Close
Moderately Close
Very Close

10b. How dependent did you feel on the deceased?

Not Dependent
Somewhat Dependent
Moderately Dependent
Very Dependent

10c. In the last two years have any of your friends, family members or pets passed away?

Yes
No

Please mark the answer that best describes how you have been feeling over the last month.

11. I am preoccupied with the thoughts of the death of person who I was caring for

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

12. I feel drawn to places and things associated with the person who I was caring for

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

13. I feel myself longing and yearning for the person who I was caring for

No sense of longing or yearning
Slight sense of longing and yearning
Some sense of longing and yearning
Marked sense of longing and yearning
Overwhelming sense of longing and yearning

14. I feel lonely since the person that I was caring for passed away

No loneliness
Feel slightly lonely
Feel somewhat lonely
Feel markedly lonely
Feel overwhelmingly lonely

15. I go out of my way to avoid reminders that the person that I was caring for is gone.

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

16. I feel like the future holds no meaning or purpose without the person that I was caring for

No sense that the future holds no purpose
A slight sense that the future holds no purpose
Some sense that the future holds no purpose
A marked sense that the future holds no purpose
An overwhelming sense that the future holds no purpose

17. I feel I have become numb or detached since the death of the person that I was caring for

No sense of numbness
A slight sense of numbness
Some sense of numbness
A marked sense of numbness
An overwhelming sense of numbness

18. I feel stunned, dazed or shocked over the death of the person I was caring for

No sense of being stunned, dazed or shocked
A slight sense of being stunned, dazed or shocked
Some sense of being stunned, dazed or shocked
A marked sense of being stunned, dazed or shocked
An overwhelming sense of being stunned, dazed or shocked

19. I feel disbelief over the death of the person that I was caring for

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

20. I feel that life is empty or meaningless with the person that I was caring for

No sense of emptiness or meaninglessness
A slight sense of emptiness or meaninglessness
Some sense of emptiness or meaninglessness
A marked sense of emptiness or meaninglessness
An overwhelming sense of emptiness or meaninglessness

21. It is difficult for me to imagine life being fulfilling without the person that I was caring for

Not difficult to imagine life being fulfilling
Slightly difficult to imagine life being fulfilling
Somewhat difficult to imagine life being fulfilling
Markedly difficult to imagine life being fulfilling
Overwhelmingly difficult to imagine life being fulfilling

22. I feel part of myself died along with the person that I was caring for

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

23. I feel that the death has changed my view of the world

No sense of a changed world view
A slight sense of a changed world view
Some sense of a changed world view
A marked sense of a changed world view
An overwhelming sense of a changed world view

24. I feel pain in the same area of my body, some of the same symptoms, or have assumed some of the behaviors/characteristics of the person that I was caring for before he/she died

Almost Never (less than once a month)
Rarely (a couple of times a month)
Sometimes (a few times a week)
Often (daily)
Always (several times a day)

25. I am bitter over the death of the person that I was caring for

No sense of bitterness
A slight sense of bitterness
Some sense of bitterness
A marked sense of bitterness

26. You have experienced the above feelings for at least 2 months

Yes
No

27. I believe that my grief has resulted in impairment in my social, occupational or other areas of functioning

No functional impairment
Slight functional impairment
Some functional impairment
Marked functional impairment
Completely functionally impaired

28. Would you like more information about grief or bereavement services?

Yes
No

29. Would you be interested in possibly being contacted as part of our future research being conducted by Yale School of Public Health and the John D. Thompson Hospice Institute for Training, Education and Research? If so, please enter you email address:

Research has identified 12 risk factors for major depression and poorer quality of life and adjustment for caregivers adjusting to the loss of a loved one. Your responses to this survey will tell you how many of these risk factors you have.

Thank you and Best Wishes


The John D. Thompson Hospice Institute for Education, Training and Research, Inc.
100 Double Beach Road
Branford, CT 06405